Dear Special Needs Mama

Welcome to the March 2012 Carnival of Natural Parenting: Parenting With Special Needs
This post was written for inclusion in the monthly Carnival of Natural Parenting hosted by Hobo Mama and Code Name: Mama. This month our participants have shared how we parent despite and because of challenges thrown our way. Please read to the end to find a list of links to the other carnival participants.

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I'm taking another break from my series on Unconditional Parenting to join this month's Natural Parenting Blog Carnival. This month's theme touches on something rather personal: parenting a child with special needs.

It's a hard and lonely road to parent a high needs child who was also born premature. To some, a child like this may not even qualify as "special needs."

Premature births are almost normalized these days, so it's easy for people to take them for granted. If the child turns out physically healthy, then everything is just fine, right? Unless you've been through it, it's hard to recognize the depth, severity, and lasting effects of the emotional trauma a family experiences when a baby is born premature.

Unless you have a high needs child, it's hard to recognize how isolating and exhausting it is. Because all infants and children are needy, it's also hard to find support or validation for parenting a "high-needs" child. The risk of blaming yourself for the hardship is high. It doesn't matter that your child's intense needs may arise from innate characteristics or be exacerbated by a traumatic birth experience.

If a child has special needs, you can bet that a mama does, too. After twenty-seven sleepless months, I'm still integrating and learning to accept our reality. I'm still working out the how-to's. The upshot is that I'm learning lessons in self-love through this process. Whether or not your child has special needs, I think all mothers deserve a lot more self-love.

So when I thought about this post, I thought about what I would most want to hear from someone on the other side. I decided to write a letter to myself -- and all special needs mamas. Here's what I came up with:

Dear Sylvia,

Be kind and patient with yourself. Coming to terms with a birth experience quite opposite from what you'd hoped, then learning to be a mother for the first time to a baby in the NICU, and then mothering a high needs child without much support are really, really hard things to do. Keep that in perspective.

Give yourself as much time to heal as you need. You have intensely emotional experiences to reconcile, grieving to do, and new found wisdom to plough. Let the process unfold as it will.

Don't compare yourself to others. Each birth story is as unique as the child that came of it. Each child has his own strengths and weaknesses that makes him easier or harder to parent in different ways. What looks easier or more fulfilling for someone else may only be part of the story.

Follow your maternal heart, that guarded and secure place, deep within your soul, that place where the two of you were once connected physically, that place where you and your son return to bond. It will guide you in your decisions and it will help you find peace.

Take care of yourself. It's easy to get lost in the extreme and constant neediness of a high needs child who still feels those pangs of loss and separation. But you are the parent, the guide, and the role model. Your well-being is critical to the process of acceptance, for yourself and your child. Nurture yourself as you do him.

Learn to see your son's strengths in his neediness and heightened sensitivity. You've been given an amazing child with keen insight and perception. Focus on those qualities. Let them lead you out of the funky pits of self-pity, resentment, and exasperation.

Know that your love matters. Although you might not feel strong or patient enough for this journey, know that you are. You're already doing it and doing it well. At the end of the day, whether it's been a good one or hard one, it's your love that matters most.

Your dearest friend and biggest fan,

MaMammalia

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Visit Hobo Mama and Code Name: Mama to find out how you can participate in the next Carnival of Natural Parenting!

Please take time to read the submissions by the other carnival participants:

(This list will be live and updated by afternoon March 13 with all the carnival links.)

• Parenting A Child With Neutropenia — Jennifer at Hybrid Rasta Mama discusses the challenge of parenting a young child who cannot produce enough neutrophils to fight off bacterial infections.
• How I Love My High Need Baby — Shannon at GrowingSlower was shocked to find she is parenting a high-needs baby, but she's surviving thanks to attachment parenting.
• We're a Lot Like You — kaidera at Our Little Acorn talks about how her family is similar to others, even with all their special needs
• The Emotional Components of Bonding with Preemies — Having a premature baby can bring on many unexpected emotions for parents, but working through those emotions can bring about a wonderful bonding experience. Adrienne at Natural Parents Network shares.
• Raising a babe with IUGR: from birth through the toddler years — Rachel at Lautaret Bohemiet shares the story of how her son’s post-birth IUGR diagnosis affected his first days of life and gave her an unexpected tutorial in advocating for their rights as a family.
• When a grandparent has a disability — Shannon at Pineapples & Artichokes shares how she has approached explaining her mother's disability to her young child.
• Taking The Time To Really See Our Children — Sam at Love Parenting writes about her experiences working with children with various disabilities and how it has affected her parenting style.
• Natural Parenting In An Unnatural Environment — Julie at What I Would Tell You gives us a glimpse into how she improvised to be a natural parent against all odds.
• Getting Through the NICU — Laura at Authentic Parenting gives a few pointers on how to deal with your newborn's stay in the NICU.
• Living With Sensory Processing Disorder — Christy at Adventures in Mommyhood talks about the challenges that can come from living with a child who has SPD.
• Our rules for NICU - March Carnival — Hannabert's Mom shares her family's rules for family and friends of a NICU baby.
• Muddy Boots: Speaking Up for Special Friends — MudpieMama shares about the day her little boy stepped up and spoke up for his best "special" friend.
• Letter from Mineral's Service Dog — Erika at Cinco de Mommy imagines the letter that accompanies her special needs son's Service Dog.
• Blessings in Unexpected Places — That Mama Gretchen welcomes an inspiring guest post from a dear friend who shares about the blessings that come from a child with Down syndrome.
• Tube Feeding with a Blenderized Diet of Whole Foods — Erica at ChildOrganics shares her experiences with using real food when feeding her daughter who was unable to feed herself and needed a feeding tube.
• Abbey and Evan — Amyables at Toddler In Tow writes about watching her preschooler play with her friend who is autistic and deaf, and wonders how she can explain his special needs better.
• How to Minimise the Chance of a {Genetically Prone} Child Being Diagnosed with ADHD — Christine at African Babies Don’t Cry shares her tips on keeping a child who is genetically prone to ADHD from suffering the effects.
• Tough Decisions: Parenting With Special Needs — Brenna at Almost All The Truth shares what has been keeping her up at night worrying, while spending her days discovering just what her options are for her precocious child.
• Life with my son — For Dr. Sarah at Good Enough Mum, life with an autistic child is just another variation on the parenting experience.
• Dear Special Needs Mama — Sylvia at MaMammalia writes a letter of encouragement to herself and other mamas of special needs children.
• His Voice — Laura at WaldenMommy relives the day her son said his first sentence.
• What is 'wrong' with you' The challenge of raising a spirited child — Tara at MUMmedia discusses the challenges of raising a child who is 'more' intense, stubborn, and strong willed than your average child.
• Tips for Parenting a Child With Special Medical Needs — Jorje of Momma Jorje shares her shortlist of tips she's learned in parenting a newborn with special medical needs in a guest post at Becoming Crunchy.
• Parenting the Perfectionist Child — Mandy at Living Peacefully with Children discusses that as parents of gifted children, we are in the unique position to help them develop the positive aspects of their perfectionism.
• Montessori-Inspired Special Needs Support — Deb Chitwood at Living Montessori Now gives a list of websites and blogs with Montessori-inspired special-needs information and activities.
• Accommodating Others' Food Allergies — Ever wonder how to handle another family's food allergies or whether you should just skip the play date altogether? At Code Name: Mama, Dionna's friend Kellie (whose family has a host of allergies) shares how grateful she is when friends welcome them, as well as a list of easy snacks you can consider.
• Only make promises you can keep — Growing up the child of a parent with a chronic illness left a lasting impact on Laura of A Pug in the Kitchen and what she is willing to promise for the future.
• A Mom and Her Son — Jen at Our Muddy Boots was fortunate to work with a wonderful family for several summers, seeing the mother of this autistic son be his advocate, but not in the ways she thought.
• Guest Post from Maya at Musings of A Marfan Mom — Zoie at TouchstoneZ is honored to share a guest post from Maya, who writes about effective tools she has found as a parent of two very special boys.
• You Don't Have to Be a Rock — Rachael at The Variegated Life finds steadiness in allowing herself to cry.
• When Special Needs Looks "Normal" — Amy at Anktangle writes about her experience with mothering a son who has Sensory Processing Disorder. She offers some tips (for strangers, friends, and loved ones) on how to best support a family dealing with this particular neurological challenge.
• Special Needs: Limitation or Liberation? — Melissa of White Noise describes the beauty in children with special needs.
• How I Learned It'll Be Okay — Ashley at Domestic Chaos reflects on what she learned while nannying for a boy with verbal delays.
• Attachment Parenting and Depression — Shannon at The Artful Mama discusses how attachment parenting has helped her get a clearer image of herself as a parent and of her depression.
• On invisible special needs & compassion — Lauren at Hobo Mama points out that even if we can't see a special need, it doesn't mean it's not there.
• Thoughts on Parenting Twins — Kristin at Intrepid Murmurings shares her approach to parenting twins.
• ABCs of Breastfeeding in the NICU — Jona at Breastfeeding Twins offers tips for establishing breastfeeding in the alphabet soup of the NICU.
• Life With Michael - A Mother's Experience of Life With Aspergers Disorder — At Diary of a First Child, Luschka's sister-in-law Nicky shares her experience as mother to a child on the Autism Spectrum. It is filled with a mother's love and devotion to her child as an individual, not a label.
• Raised by a Special Needs Mom — Momma Jorje shares what it was like growing up as the daughter of a mother with a handicap.
• Becoming a Special Needs Mom — Ellen at These Broken Vases shares about becoming the mother of a child with Down syndrome
• She Said It Was "Vital" — Alicia of Lactation Narration (and My Baby Sweets) discusses the conflict she felt when trying to decide whether therapy was necessary for her daughter.